TÉMOIGNAGES

I am a FMS/CMPS subject and have been for the last 9 years. I am also Disabled do to this infirmity. It took 5 years for me to find a doctor that knew what I had. For those of you who are having a hard time getting a doctor to believe in your pain, see a Neurologist. They are usually more up to date on Fibromyalgia. I will be glad to try and help anyone understand this horribly cruel infirmity. I will listen. Je voulais simplement vous féliciter personnellement pour votre page web sur la fibromyalgie. J'ai 23 ans et je suis atteinte de la fibromyalgie depuis un an. J'ai fait plusieurs librairies pour me documenter à ce sujet et je n'ai rien trouvé. Les médecins en disent peu là-dessus. Je remercie les gens comme vous qui m'ont fait connaître beaucoup de choses. Merci pour les renseignements sur la fibromyalgie et j'en suis reconnaissante. Vous m'avez aidé et soulagé par le fait même. Je vais glisser un mot de la pétition à mes proches. Vous avez bien raison, il faut qu'il y ait le plus de signatures possibles. Mille fois merci pour les renseignements de votre page web!! Please add my signature to your petition. Thanks. I am a fellow fibro sufferer, diagnosed by a rheumatologist over a year ago, and denied Social Security Benefits. Montana I have been diagnosed with Fibromyalgia and currently am being discharged from the United States Air Force due to my condition. I want those out there that don't understand this disease, to finally begin to understand it!!! Je serais en faveur que la fibromyalgie soit, dans un avenir rapproché, reconnue comme maladie invalidante au même titre que la maladie du syndrome de fatigue chronique. En effet, il n'est pas évident de demeurer performant au travail avec une telle maladie.Qc After undergoing several surgeries from hysterectomy at age 27, to cubital, carpal tunnel and ulnar nerve surgery, the doctors finally concluded it was fibromyalgia. I am getting some pay through an insurance company for disability, and I work part time. The stress from the insurance company hounding me to "quit being lazy", and to "try to make life better for the family, financially, by going full time" causes the problem to "act" up. To whoever would say, "they're faking it" should live one day with the pain. I'm sure alot of sufferers send you their stories. thank you for your time to read this. Bravo, je signe volontiers votre pétition d'autant plus que je souffre de la fybromaylgie depuis plus de 15 ans !!!! Suisse Hello, I would very much like to sign your petition. I work in a lab, and I have personally watched my boss go through torture, because none of our doctors would believe her pain. They treated her as if she were a drug seeker. This was the biggest insult of all. All of us who worked closely with her, could see her pain and knew she was not faking, however all of us could not accompany her to her doctors visit. Only one of our OB-GYN doctors was human enough to listen and not judge. Thank God for Dr. Warren Overbey. He was able to diagnois her almost immediately. Good Luck in your efforts!!!!! North Carolina. Could you please respond with treatments available now. Thank you I have Traumatic-Fibromyalgia, triggered by an Amtrak train derailment in 1990. I am one of those who are trong willed, was hard working, etc. Also one that thinks suicide is wrong. But came close to suicide a year ago. Became even more humiliated. I have no money, no insurance, no medication, and I am going down hil fast. I have been waiting for ssi/ssd for 3 years now, they said it take longer here in FL. I am in the appeals process, I saw the first Judge over a year ago. I suffer from this and Rheumatoid Arthritis (FMS-CFIDS) plus other things very painful New York City As the Creator of May 12th International Awareness day, I heartily endorse this excellent petition. I also ask permission to post a link to this site from our site.your site is .If you have any problems with us putting up a link, please let me know. thanks for your support. FMS sufferer for several years sign this document. I also have a daughter age 13 diagnosed with FMS at age 9. Amie d'une personne souffrant terriblement de cette maladie, j'ai très envie que la recherche évolue Belgique My former husband has been diagnosed with fibromyalgia. I have been diagnosed with this condition and am having a very painful time with it now. I am almost unable to function. Pain is very severe, and I can barely get out of bed each morning. Any help would be greatly appreciated.Thank you. Texas Louise, tout d'abord bravo pour ce que tu fais! Belgique. I Know personally of this syndrome, for i have been diagnosed with it 2 yrs ago, and still am suffering and in pain and MISSUNDERSTOOD, whether it be DRs or family or friends. I too at times just want to give up  because NOBODY is hearing me and what i feel and go thru each day,but then how can they? Unless you feel this pain and depression,and frustration how can someone else know? We must try to get help, I'm trying still and it seems I'm still going in circles,cause no one listens When I wake up crying (if am lucky to sleep more than 4hrs) because I am in so much pain I need to get in the bathtub w/hot water,if my daughter isn't here I don't sometimes in pain too much. I want to feel good again!!!!!I want someone to say i BELIEVE you and how can I help?i don't want to give up on life but some days it seems to get closer................ Louise, Tu vas penser: toujours les mêmes! Tout d'abord une question: penses-tu que les signatures des petits belges soient réellement prises en compte pour ta pétition? Si oui, je peux faire sauter ton disque dur. J'explique: J'apprends ce jour même que la Belgique un royal a par notre ministre de la santé et la maladie est maintenant reconnue. l'article au moniteur belge! En fait je me suis lancée à la recherche d'informations pour aider mon amie Cécile qui souffre depuis 10 ans. Elle a animé une émission de télévision sur notre chaîne nationale qui sensibilisé beaucoup de personnes. J'ai parlé de ta pétition à Cécile et elle pourrait me fournir une liste impressionnante de personnes concernées qui souhaiteraient signer. J'en reviens à ma question, cela t'aiderait-il? Tout le monde est prêt à te soutenir. L'union ne fait-elle pas la force? Amicalement Fibomyalgia is a devastating disorder. it has drastically changed my life. though i will not die from this disorder, sometimes i wonder how i will go on. Be glad to sign anything to help get the word out on fibromyalgia North Carolina I would like to urge funding to find a cure for FMS and support of those suffering from it. Sincerely, Maine I suffer round the clock with Fibromyalgia and Myaofascial Pain Syndrome ...I wholeheartedly support the presentation of this pettion Missouri I support the petition regarding fibromyalgia and myofascial pain syndromes. I, too, suffer from FMS and feel the medical community, government, and others need to be made aware of the daily difficulties we face as victims of this condition. Nebraska My husband and I both want to sign the petition. My mother has this disease and any research that may be able to help her and others like her should have the funds needed to test medicines. I hope these two signatures will help some.. Thank You! Florida I fully agree and demand the right to be treated farely Thanks for getting the petition organized. There is a much needed awareness and understanding for fibromylgia.. Bonjour ! Nous avons lu avec attention le dossier concernant la Fibromyalgie. Mon épouse semble en effet avoir tous les symptômes qui sont décris dans ce dossier. Malheureusement, notre médecin traitant n'a pas l'air de vouloir prendre nos investigations au sérieux. Ayant subi également une hospitalisation de deux semaines, les responsables de l'établissement hospitalier où tout une batterie d'examens ont été effectués sont revenus "normaux". C'est dur, non ? Est-ce réellement incurable ? Merci de votre soutien et à bientôt. de la France I enthusiastically wish to add my name to your petition. FMS/MPS sufferers should not be denied support, both financial and medical, due to the ignorance of policy-makers and doctors. The body of knowledge, just as technology, is increasing exponentially. What is believed one day is disproven the next. Too many individuals have symptoms unexplained by any other label than FMS or MPS to have the diseases pooh-poohed or ignored. These folks are NOT LIARS! Florida I support your Fibromyalgia petition wholeheartedly, as a Fibro, and myofacial sufferer for 10 yrs. I am a chronic pain sufferer and take meds every day that really don't help. sufferer of : Fibromyalgia osteoarthritis severe migrains sympathetic nerve damage TMJ constant and chronic pain mild ibs and many , many more chronic symptoms on a daily basis, which are all in one way or another associated with Fibromyalgia, Arthritis and all of the above petition mentioned Diseases and illnesses. Good Luck to us all!!!!!! New Hampshire I suffer constant pain that only allows me to sleep 1-2 hours at a time sometimes from just pure exhaustion. It is time research be engaged to determine cause and treatment for this horrible devastating illness. Good Luck, Fla I agree with the petition in its entirety. I am an FMS patient. It has destroyed life as I knew it rendering me to become dependent upon others instead of the self-sufficient individual I was before it's complete onset. Tn I have been suffering with fibro for 12 years. We need answers and disability benefits. Colorado I, a sufferer of Fibromyalgia Syndrome and Chronic Myofascial Pain Syndrome, a mother of two children who exhibit early signs of these debilitating conditions, a daughter of a mother who suffers from these debilitating conditions, and a sister of a sister who suffers from these debilitating conditions, hereby affix my "signature" to this petition. I am honored to be a part of this movement in this way. I WAS DIAGNOSED WITH FIBROMYALGIA FINALLY AFTER YEARS OF SYMPTOMS IN 1994. I HAD BREAST IMPLANTS IN 1987 AND STARTED HAVE SYMPTOMS IN 1989, IT WAS NOT UNTIL 1997 UNTIL I COULD GET THEM OUT. MY HEALTH HAS STEADILY DECLINED OVER THE YEARS AND I HAVE BEEN TRYING TO GET SOCIAL SECURITY APPROVED FOR 5 YEARS NOW. OF COURSE IT IS A WAITING GAME WITH SS, I'VE TRIED TO WORK MANY JOBS OVER THE YEARS BUT HAVE FAILED. I AM NOT THE SAME PERSON I USED TO BE AND AM TIRED OF BEING SUCH A BURDEN (MAINLY TO MY HUSBAND). IF ANYONE KNOWS OF A FM DOCTOR IN DALLAS WHO WILL HELP ME WHEN THE MDL COMES UP WITH THEIR CRITERIA LIST AGAIN I WOULD APPRECIATE ANY RECOMMENDATIONS. I LIVE IN SUMNER (PARIS) TEXAS AND IT IS ABOUT 100 MILES FROM DALLAS. IF ANYONE COULD HELP I WOULD APPRECATE IT. THANK YOU Texas I am a director of nursing for a small psychiatric hospital in atlanta ga. I have been diagnosed with fibromyalgia and chronic myofascial pain syndrome for approximately 4 months and am currently out of work due to it's effects. I will probably have to give up my career at this point in favor of decreasing the stress in my life and modifying my activities to deal with this illness. We need all the help we can get from the medical community in recognizing this devastating illness and researching it's treatments. Georgia My sister suffers from this terrible ordeal, and I want to sign the petition. I hope that this will help all those who are afflicted with this disease. There does need to be more research done. Colorado Please add my name to this much needed and appreciated petition. I have suffered with Fibromyalgia for over 14 years. The disease is real and needs to be recognized !!!Florida I have a severe case of CFIDS, MCS as well as Fibromyalgia and want to sign the petition in helping to increase the awareness of this very painful affliction! Thank you for the opportunity of getting the word out on the devestation of FMS! I wish there was a way for me to emphasize the strength of my support of and total agreement with the contents of this petition. I am a 24-year-old woman who's life ambitions have been all but shattered by this disabling illness. Often the emotional pain is just as devastating as the physical pain. At the moment I am without treatment because the vast number of doctors which I have consulted over the past five years either strongly believe that it's " all in your head", has a purely psychological basis, and/or tell me that I am exaggerating my pain and that I am not disabled. As I write this, it's 1:00 am and I can't sleep because of the pain. There are hundreds of others like me who need help. I would like to emphatically add my name to this petition. I have been suffering from pain all over my body for at least the last 35 years. About a month ago I was diagnosed with fibromyalgia. I have spent countless $$$$$$ and I went to every doctor and specialist that my primary care physican thought I should go to see. After many test, they couldn't tell me why I was in so much pain ALL over my body. I also suffer from Migraine Headaches. I have a primary care physican who is affraid of the DEA so he will not prescribe the medicine in the quantity that it would take for a whole month, consequently I go without medicine for at least 2-3 weeks each month. I have been in 5 car accidents which were not my fault and I had to have Chemo Therepy and Radiation Therepy due to Breast Cancer. I don't know if any of these could have caused the Fibromyalgia or not. There isn't a day that goes by that I am not in pain.